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AutismSpeaks.org - Transition Tool Kit: Adolescence to Adulthood

Here is the link to Autism Speaks' Transition Tool Kit
http://www.autismspeaks.org/family-services/tool-kits/transition-tool-kit


Here are some highlights:



It is important be mindful that the transition process must include goals that are:
Outcome-oriented
  • Based upon the student’s strengths and areas of need
  •  Focused on instruction and services for education, employment, and other living skills.
  • This is a process that will continue to evolve. The transition plan is a work in progress that should be monitored several times per year. You and your adolescent with autism will continue to learn and grow during this process, and you will need to adjust your plan accordingly. By beginning early and working collaboratively with your school district, outside agencies and others in your community, you will be able to make the best possible use of educational entitlements afforded to your child with autism before he or she enters adulthood.

"As far in advance of the first meeting as possible, you should talk with your adolescent with autism about what he or she may want to do in the future. While out in the community, you can identify different jobs that may be of interest to him
or her. You may also want to point out older siblings or other young adults in your family or neighborhood that are going off to college, getting a job, or living on their own. It is important to remember that this may seem like a scary topic for adolescents with autism to discuss, and they may not be ready. Some families have shared that they have scheduled a specific day of the week and a specific time to discuss future plans with their young adult. Along with their adolescent, one family scheduled Sundays from 3:00 to 3:30 as their time to discuss employment, living arrangements, or community life.
This helped provide structure and a time limit on a sensitive subject. It also provided some time for the young adult to prepare for what he or she was going to share during these sessions. "


Keeping It Real: How to Get the Supports You Need for the Life You Want
http://rwjms.umdnj.edu/boggscenter/projects/keep_real_more.html

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Prozac May Reduce Symptoms of Autism in Adults


The antidepressant Prozac may alleviate repetitive behavior and obsessive-compulsive symptoms in adults with autism, reducing these defining symptoms of the disorder, according to new research.
The research, which included 37 high-functioning autistic adults, mainly diagnosed with Asperger’s syndrome, followed participants for 12 weeks. Taking Prozac (fluoxetine) doubled the chances that a patient would show overall improvement, measured by their clinicians. Half of the participants taking Prozac had significant reductions in obsessive-compulsive symptoms, compared with 8% taking placebo. Side effects were mild to moderate and participants taking Prozac did not show increases in suicidal thoughts or ideas.
“Repetitive behavior is a core symptom of the illness,” says lead author Dr. Eric Hollander, medical director of the Autism and Obsessive-Compulsive Spectrum Program at Montefiore Medical Center in New York, explaining that “from a very early age, these children have rituals and routines. For example, they like to line up their toys and they get very bent out of shape if there is any deviation.”
A previous, larger study of a similar medication, Celexa (citalopram), in autistic children did not find a reduction in repetitive behaviors, but the drug did reduce irritability and was superior to placebo among children who had the highest levels of irritability. Irritability can sometimes lead to repetitive behaviors because autistic people often engage in these activities to soothe themselves.
Both Prozac and Celexa belong to a class of antidepressants known as selective serotonin reuptake inhibitors, or SSRIs. Prior research on SSRIs in autistic people has also looked at Luvox (fluvoxamine) and found a reduction in repetitive behavior in adults but not children. It is not known if the differences between these studies are due to differences between the medications or other factors.
Obsessive behaviors may also arise in autistic people in response to the stress or discomfort of unpredictable situations. “Many of these individuals have expectations for what’s going to happen, and if there is an unexpected deviation, they experience a lot of discomfort and then they do all these kinds of behaviors,” says Hollander. That’s why people with autism may obsessively avoid locations where they previously experienced discomfort, for example, or they may engage in a repetitive habit like washing, checking, counting, touching or tapping.
When taking Prozac, Hollander says, “Patients acknowledge experiencing less discomfort. They’re more able to go outside their comfort zone and to better resist their habits and rituals.” One participant in Hollander’s study was previously too anxious to take the subway or eat in a restaurant, but, when taking Prozac, was able to tolerate these unpredictable environments.
“It takes the edge off,” Hollander explains, noting that the findings were statistically significant and clinically meaningful. “The clinicians could tell that people were doing better not only in terms of OCD symptoms but overall distress and ability to function.”
The only drugs approved to treat irritability and repetitive behaviors in autistic children are the atypical antipsychotics Risperdal (risperidone) and Abilify (aripiprazole), which tend to have more severe side effects than Prozac does. Those drugs carry significant risk for weight gain, diabetes and movement disorders.
Responding to the research, Yale Child Study Center director Fred Volkmar told WebMD: “The question remains, ‘Is fluoxetine better than risperidone for this symptom?’ It would be interesting to see studies comparing these two drugs head to head.”
Hollander has previously received funding from pharmaceutical companies, but the current study was paid for by a grant from the Food and Drug Administration’s “orphan” drug program. That program funds research on rare conditions with new drugs or those no longer patented that are not likely to be pursued by industry. When the research was originally funded, Hollander says, autism was considered to be a rare condition.
The study was published in the American Journal of Psychiatry.
Maia Szalavitz is a health writer at TIME.com. Find her on Twitter at @maiasz. You can also continue the discussion on TIME Healthland’s Facebook page and on Twitter at @TIMEHealthland.

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Breaking Studies Demonstrate Positive Benefits of Autistic Children & Adults Using Computers
Recent studies by Nottingham University and Carnegie Mellon University have shown the enormous benefits and functionality that those in the autism spectrum experience when using computers. Belmont Technology provides a cost-effective way to employ computer use in homes and institutions that educate those in the autism spectrum.


Elk Grove Village, IL (PRWEB) March 14, 2012
In recent years, more and more educators have found the positive benefits of incorporating computer-based learning in the classroom of autistic children and adults. This is supported by brand new research in the field of computer-based learning for those in the autism spectrum.
Autism spectrum disorders (ASD) are a group of developmental disorders that first appears in children around age 3. Autism affects the developing brain and hinders the normal development of social and communication skills. The Center for Disease Control and Prevention estimates that 1 in 110 children in the United States have some form of ASD.
Children and adults with ASD struggle with both verbal and non-verbal communication, which affects their ability to learn in a traditional teaching environment. Many times parents and educators feel frustration or helplessness with respect to educating a child with ASD. While every ASD case is unique, studies have shown that computer interaction is one way those with ASD can learn and interact.
According to a new study by Nottingham University and Carnegie Mellon University, there are a number of factors that make computer learning easier for those with ASD.

  • ASD has a tendency to affect sensory processing, which limits writing ability but allows for typing.
  • The precision and predictability of computer-formatted information is very useful for those in the autism spectrum.
  • Those with ASD may demand complete control on a variety of aspects, making classroom learning nearly impossible, but computer learning a good option.
  • The sound effects and graphics that can be employed through computers are engaging and stimulating for this in the autism spectrum.
  • Communication is processed in a simple and non-threatening manner that adds comfort to those with autism.

Professor Simon Baron Cohen, Director of the Autism Research Centre, stated that the benefits for computers among this type of users are profound. "We can use computers to teach emotion recognition and to simplify communication by stripping out facial and vocal emotional expressions and slowing it down using email instead of face-to-face real-time modes."
While there are a number of software programs and applications that are targeted to those with autism, autistic children and adults can be very entertained, productive and talented with all types of computers. As anyone that has personal or professional experience with autism can attest, the demands of raising or educating a child with autism can be tolling on one's patience as well as wallet.
Fortunately, there are a number of ways to minimize some of the costs of educating a child or adult with autism. One such way is to invest in a refurbished desktop PC or refurbished laptop. When buying from a trusted computer distributor like Belmont Technology, you can be assured that you will receive a fully-functioning computer backed with a 90-day warranty.



For the original version on PRWeb visit: www.prweb.com/releases/prweb2012/3/prweb9274701.htm

Read more: http://www.sfgate.com/cgi-bin/article.cgi?f=/g/a/2012/03/14/prweb9274701.DTL#ixzz1p8eahNlh
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http://www.mercurynews.com/bay-area-news/ci_20133086/parents-autistic-children-speak-out-sunnyvale-murder-suicide

Parents of autistic children speak out on Sunnyvale murder-suicide

Updated:   03/09/2012 07:08:22 AM PST

Taking care of autistic children is hard enough, but caring for them when they grow up can test a parent's resolve like nothing else.
When a Sunnyvale woman fatally shot her 22-year-old autistic son and then herself this week, empathetic parents of autistic children, young or old, spilled out their frustration, anguish and opinions on the Internet and in interviews with reporters.
Trudy Grable, a director at Parents Helping Parents in San Jose, knows the agony firsthand -- her 27-year-old daughter, Lauren, is autistic. When she "aged out" of the educational system for autistic children, Grable said she felt a pit in her stomach each time she checked out an adult day programs.
"There would be old people there, or their disabilities were different," Grable said. "I just kept thinking, 'My child doesn't belong here.' And then you'd go through this grief process all over again."
Autism is a developmental disorder that has a wide range of symptoms, from mild to severe problems with behavior, communication and socialization.
School districts are required to provide education and other services to autistic children until they reach age 22. Parents and experts say after that it becomes much more challenging to find them adequate care, which can be expensive and increasingly scarce due to budget cuts.
Elizabeth Hodgins was somewhere in that process when she picked up a handgun Tuesday and fatally shot her 22-year-old son, George,
in his bedroom. Neighbors told this newspaper she was overwhelmed and discouraged by the difficulty of finding a program for him. How hard she tried and why she couldn't find another program remain unclear.
One of the Hodgins' neighbors said George Hodgins was low functioning and high maintenance, unable to speak and easily agitated.
On Thursday, police disclosed that Elizabeth Hodgins used her own gun in the murder-suicide. Lester Hodgins, Elizabeth's husband and George's father, has not spoken publicly about the tragedy.
While they don't condone or excuse what Elizabeth Hodgins did, parents interviewed by this newspaper said they understood what would drive a parent of an autistic child to commit such a senseless act.
Parents and teachers of autistic children also said Hodgins' plight may have been worsened by the deep funding cuts to autism care in California.
Joanna Jaeger, of Milpitas, has an autistic 19-year-old son. She served as a "stakeholder" on a state committee asked to cut $200 million from the state Department of Developmental Services, which runs autism programs.
"There are cuts, cuts and more cuts," said Jaeger, who also serves on the board of Parents Helping Parents, a nonprofit support group. She said many parents don't have long-term plans for their autistic children beyond trying to outlive them. Only a few families have enough help and money to afford adult services.
"A lot of people, they get pretty desperate," she said. "We don't know what caused this mother to do this. But every mother I know who has a child with special needs has a moment just like that. I am heartbroken."
Brian Darby, who teaches adults with autism and other disabilities at the Independence Network in Santa Clara, gave the state high marks for treating autistic children but less credit for adult care. He said the school, which enrolls about 64 disabled adults, gets $60 per student per day from the state, a reduction from previous years.
"The notion is, OK, they're ready for work, ready to live on their own, because of all the money being spent on them when they're kids," Darby said. But when they are not, he added, "They are isolated," and their parents quickly become overwhelmed.
According to a 2002 survey by Developmental Services, there were about 20,400 autistic children and adults in state-funded programs, 70 percent of them younger than 15.
Parents and autism experts are worried the problem will only grow worse, as hundreds of thousands of autistic children nationwide become adults over the next decade as states cut more social and medical services.
Anna Wang, of Fremont, a co-founder of the Friends of Children with Special Needs, said 165 autistic people attend the center's adult day care program, and she has a waiting list of 55. The center opened with 10 families in 1996, she said, precisely because there was nothing around to help her autistic son, Lawrence.
"This is why we parents are always going to Sacramento," Wang said. "We go to fight for funding."
Thirty autistic adults now live in apartments on the center's Peralta Boulevard property and three more in San Jose.
Lawrence is now 22, and Wang was able to figure out a way to have him live at home, work three part-time jobs and play saxophone -- all things that make her luckier than parents whose children can't function as well as her son can.
Elizabeth Hodgins had been wired into the autistic community. Her son attended the Morgan Autism Center in San Jose, which he left in December. Executive Director Jennifer Sullivan said Hodgins wanted to find something more appropriate and community-oriented for her son.
It's unclear what help she may have asked for or received at the San Andreas Regional Center, the state's go-to operation for local families with special-needs children, including autistic adult children. Managers of the center did not return phone calls Thursday.
Grable, of Parents Helping Parents, said Elizabeth Hodgins was first a volunteer and then a short-time staffer with the group. She even wrote a letter to the Mercury News in 1995 on how the support group had become her "angels," helping her with the "fear, grief, pain, anger, guilt and anxiety over my son's condition -- and my ability to cope with it." Hodgins left the group as her son grew older.
Using all her knowledge and resources, Grable figured out how to care for her autistic adult daughter by pooling state and federal money together to pay for a care worker several days a week. But she said not every parent has the energy or know-how.
"She may not have found the right program," Grable said. "I wish we could have helped."
Jason Shapiro, 46, who lives in El Dorado County, said he was denied the services he needed for his severely autistic son, Richard Wilson, 23. Shapiro filed two lawsuits demanding financial reimbursement for a care worker and a group home for "supported living" services.
Shapiro said he feels like he is at wits' end, just like Hodgins must have felt. He and his wife divorced, and he is now unemployed from the financial industry and takes care of his son full time.
"This poor lady," Shapiro said. "I was denied all these services that my tax dollars go to support. And then you just become a prisoner. You can't ever leave the person in your care."
Staff writer Sandy Kleffman contributed to this report. Contact Lisa Fernandez at 408-920-5002. Follow her atTwitter.com/ljfernandez.
  • Parents Helping Parents: 408-727-5775 or toll free in California 855-727-5775; www.php.com
  • Friends of Children with Special Needs in Fremont and San Jose: 510-739-6900 and 408-725-8000;www.fcsn1996.org 
  • Morgan Autism Center in San Jose: 408-241-8161; www.morgancenter.org
  • Housing Choices Coalition for Santa Clara, Santa Cruz and Monterey counties: 408-284-0990, 831-722-3955 or 831-722-3304; www.housingchoices.com

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    Autism Speaks and American Medical ID Partner for World Autism Awareness Day on April 2, 2012


    Portion of proceeds from special edition medical ID bracelet to be donated to Autism Speaks.
    Houston, TX (PRWEB) March 13, 2012
    American Medical ID today announced a partnership with Autism Speaks, North America’s leading autism science and advocacy organization. The announcement comes ahead of World Autism Awareness Day on April 2, 2012.
    As a parent, it is not hard to imagine the fear and panic that sets in when a child goes missing. Where to look, who to call, and the police at your door are all quick and common thoughts for parents of any child, but what if that child also has autism?
    This is frightening enough for any parent, but when the child has autism there is an entirely different level of concern due to the child having neither the usual respect for strangers nor the developed situational fear of danger that keeps most kids out of harm’s way.
    Each year across the country, children and adults with autism spectrum disorders go missing from their families. Often the person with autism passes people on the street and no one helps or even understands that help is needed. To keep these events from escalating, it is important for everyone to help build awareness in their community about autism spectrum disorders.
    For these reasons, it is recommended that children and adults who have autism spectrum disorders and who are prone to wandering, are non-verbal or would have problems communicating during an emergency, wear a medical ID bracelet or pendant. The medical ID should include the wearer’s name, their condition and at least one emergency contact’s name and telephone number.
    As part of the partnership, American Medical ID will begin selling a special edition medical alert ID that incorporates an Autism Speaks awareness bracelet. A portion of the proceeds will be dedicated to funding research into the causes, prevention, treatments and a cure for autism, increasing awareness of autism spectrum disorders, and advocating for the needs of individuals with autism and their families.
    “We are proud to be partnering with Autism Speaks. It is great to know that not only do medical IDs give many members of the autism community some peace of mind, but that a significant portion of the sales proceeds will go toward funding research, increasing awareness and advocating for individuals with autism and their families,” said Rick Russell, CEO of American Medical ID.
    In addition to funding research, Autism Speaks has created resources and programs including the Autism Speaks Autism Treatment Network, Autism Speaks’ Autism Genetic Resource Exchange and several other scientific and clinical programs. Autism Speaks has played a critical role in securing federal legislation to advance the government’s response to autism, and has successfully advocated for insurance reform to cover behavioral treatments in 29 states thus far, with legislation continuing to advance in more states. Notable awareness initiatives include the establishment of the annual United Nations-sanctioned World Autism Awareness Day on April 2, which Autism Speaks celebrates through its Light it Up Blue initiative.
    Since 1994, American Medical ID has created high quality, customized medical identification to meet our customers’ everyday lifestyle. Medical IDs are available in a variety of bracelet and necklace styles for adults, teens and children. Every ID is personalized with complimentary engraving. Candidates for a medical ID include anyone living with diabetes, asthma, heart conditions, autism spectrum disorders, stroke risk or memory impairment;, persons with allergies such as food, drug or insect;, and those taking multiple medications or blood thinners. For more information about American Medical ID, visit http://www.IdentifyYourself.com, email info(at)americanmedical-id(dot)com or call 800.363.5985.
    If you would like more information about this topic, or to schedule an interview, please contactJustin Noland at (713)600-6713 or email JustinN(at)IdentifyYourself(dot)com.
    For the original version on PRWeb visit:http://www.prweb.com/releases/prweb2012/3/prweb9276590.htm


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